


MY, Malaysia
Faculty
President
Malaysian Rare Disorders Society
Nadiah Hanim Abdul Latif is a sustainability and corporate affairs leader with over two decades of cross-sector experience spanning corporate, NGO, humanitarian, social enterprise, academic, and ministry-linked advisory roles. She works at the intersection of strategy, advocacy, and public health, applying her expertise to rare diseases, child and disability rights, and inclusion — strengthening institutions and enabling innovation ecosystems that deliver practical impact.
She serves as President of the Malaysian Rare Disorders Society, is a Board Member of Rare Diseases International, serves as the SEA, South Korea, and MENA regional representative for the Phelan McDermid Syndrome Foundation, and Co-Chairs the Global Rare Disease Network Working Group on Care Pathways. Her work has contributed to landmark efforts, from co-establishing Malaysia’s first reporting portal to combat child sexual exploitation and abuse materials, to advancing national action plans on business and human rights, multi-stakeholder policy platforms, and coordinated care dialogue at national and international levels.
Beyond rare disease leadership, she serves as an Adjunct in academia, a Media Anchor, a socialpreneur, an Assistant Child Protector, and a Child Court Advisor for the Petaling District within the justice system.
Across these roles, she builds ecosystems, connecting diverse stakeholders with the aim to advance coordinated solutions in complex environments.
Nadiah believes meaningful progress happens when we listen deeply, work collectively, and act with both courage and kindness.
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